Skip to main content

All I want for Christmas . . .

. . . is to know that baby A is OK . . . allow me to "vent" a bit . . .

It has been a little over a month now that we have been waiting to hear from insurance as to whether they will cover A's blood test and how much of it. After talking to the rep from the company that does the test two weeks ago, I felt pretty confident that the insurance would cover 90% of the test and our deductible would be covered, so when all was done, the test would cost us around $600.

We finally got word at the beginning of this week. Insurance will cover only 60% of the test and because it has taken so long our deductible went up from $0 to $500 (because it will not get billed until to 2009). So, when the bill comes in, it will be over $2,000.

When I heard this, I was upset. That is a lot of money for a blood test that, according to all other results, did not even seem necessary. Before I would agree to the test, I called our cardiologist to see why it is essential that A have this test done. After two days, I still had not heard anything back from the cardiologist.

Today, I was determined to get this done and get the answers I needed. For over two hours, I was on the phone with:

1. A nurse in our cardiologist's office (he, of course, is on vacation)
2. The rep from the company that does the test (spoke with her 3 times this AM)
3. Our insurance company (to see if they would consider this test "in network" and cover 90 % of the test (the lab that is doing the test is the ONLY ONE IN THE NATION THAT DOES THIS TEST, so we could not get anyone in network if we tried)

Anyways, after all of that, i am a bit frustrated and sad. frustrated because I heard different answers from 2 people at our insurance company and something different from the rep at the lab. I honestly do not know who to believe. The insurance company wants to pay as little as possible, I am sure. And the lab, wants us to get the test done. Each may bend the truth to get what they want.

I am sad because the nurse at the cardiologist's office made me nervous for the first time since A's 24 hr EKG that he could have long QT syndrome. After his EKG came back good, I was pretty confident that he would not have it, but now, the nurse made it seem that there is a good possibility that he may have it. I wish I could talk to the Dr. I wish I knew for certain that A was OK. I wish the blood test was already done.

After all the conversations were over, we were still in the place we were before I made the calls. Insurance will not cover anymore than already stated. I made one final call to the lab to proceed with the test.

Shorty after Christmas, I will get the results and, hopefully get "all I want for Christmas".

Comments

  1. Hi Katie,

    My daughter has LQT as well. We did the genetic testing and it came back negative for any of the known types. It's so frustrating not knowing what could trigger her. Luckily she's been fine but it's still hard.

    Email me if you would like to chat.

    sierra0278 at aol . com

    ReplyDelete
  2. Hi Katie,

    I received a google alert about your blog because it was about Long QT Syndrome. My husband was diagnosed with Long QT while I was pregnant with our third child, and at birth her EKG proved to be abnormal. Our 3 year old son was subsequently diagnosed as well. We had the genetic testing done, and it was a frustrating, time consuming process to get insurance approval. I just wanted to suggest that if you or your husband have a human resources rep with your employer (whoever holds the insurance), they can sometimes be very helpful in getting things moving. Also, because this condition is USUALLY inherited from a parent, getting an EKG done on you and your husband might also provide some insight.

    This diagnosis is difficult to come to terms with, but the strength comes to deal with what you need to. Good luck with everything, and I hope that the tests ultimately prove the doctor's suspicions wrong!!!

    Renee

    ReplyDelete

Post a Comment

Popular posts from this blog

The Gift (Our NFP story) Part 2

(You can read  Part 1 here

     So, by the time Andrew was 18 months old, we knew God was saying no to having more children at the time.  And, as mentioned before, He provided so much peace about it, that we knew we had discerned correctly.  Yet, even with that peace, I had to mourn the fact the we might not ever have any more children.  Yes, we were still open to life, of course, but from the time after Andrew’s birth, until today, we practiced NFP faithfully to avoid pregnancy.  And it took time to accept that we might not have any more children.  There were times when I would hold a friend’s new born baby and then go home and cry because I knew I might not ever know the joy of holding my own baby again.  We live in a community where life is celebrated and families are large.  Usually more than one friend is pregnant at a time.  In those early days, each pregnancy announcement was met with great joy for the friend, but often left me with an empty feeling.  I understood, in many way…

The Gift (Our NFP story) Part I

(I started writing this post months ago, but have not had time to refine it and finish it.  I have felt the need to hit "publish" lately though.  Maybe it is because Hope is too quickly approaching 12 months old and my desire to share it's sentiments would be lost soon. Or maybe it is because this week is the March for Life and the sacredness of life is before me in a precious little girl and I want to remember that, in words, here.  But whatever the reason, here is our story of seeking God's will and and being open to life.)

Shortlyafter we announced that we wereexpectingbaby Hope, I felt that I needed to share ourNFPstory.  Partially, it was because we had so many people say thingslike, "What a miracle!" or share stories of how people they knew were infertile, adopted and then had a baby of their own, thatI feltthat many people probably got the wrong idea about why we had three boys, waited a while and adopted and then found out we were expecting a baby wh…

Yonanas and a yummy protein chocolate peanut butter ice cream

I have to admit, I have a sweet tooth.  A big sweet tooth.  I blame it on genetics.  My dad loves sweets and I think my grandmother, his mother, subsisted only on foods that contained sugar.  But, when you are working on eating healthy and bringing the whole family along with you, things like ice cream, cookies and cakes have to replaced by something better.

So, when Lena from JOYfilled family posted about the Yonanas she got, I wanted to try it!  Yonanas makes "ice cream" from frozen bananas.  I have heard of making "ice cream" this way before and I have tried it in our blended, but it usually came out quite liquidy.  So, when we got a gift card for Amazon, I knew exactly what I wanted to buy.

I have used the Yonanas several times and I love it!!  The consistency of the "ice cream" is very smooth, light and creamy.  My 4 year old, who is a very picky eater, loves his new "ice cream."  Now, my older boys could not be fooled . . . they immediatel…